My CADASIL story in 5 minutes
It was Saturday, March 3, 2003. I laid down to take a nap. When I awoke an hour later, my left hand was numb and wouldn't wake up.
I drove to the hospital remembering my mother and her small strokes. The hospital staff told me I probably pinched a nerve in my neck. My blood pressure was always normal to low, so those findings were not surprising to me. I was sent home and told to see the doctor on
Monday. Sunday morning I could not talk or walk and I felt terrible. I drove back to the hospital and the neuorologist that took care of my
mom was there and on the phone with the neurologist at the University of Pennsylvania. I was given an MRI with contrast. The doctors
read the MRI as Multiple Sclerosis. I was taken to Bryn Mawr Rehabilitation Hospital on Monday and remained there for 30 days. I worked
One of the doctors had heard of CADASIL and was convinced that was my condition, not MS, and I was treated for a stroke. Now we know that my mom and her dad had CADASIL. I have 5 children and 4 of them have symptoms. Please help us find a cure for CADASIL.
National Stroke Association’s mission is to reduce the incidence and impact of stroke by developing compelling education and programs focused on prevention, treatment, rehabilitation and support for all impacted by stroke.